Economic burden of the persistent morbidity of nodding syndrome on caregivers in affected households in Northern Uganda

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dc.contributor.authorSamson Yoane Latio, Lugala
dc.contributor.authorHai Nam, Nguyen
dc.contributor.authorShah, Jaffer
dc.contributor.authorSmith, Chris
dc.contributor.authorSakai, Kikuko
dc.contributor.authorStonewall Shaban , Kato
dc.contributor.authorIdro, Richard
dc.contributor.authorMakoto, Nishi
dc.contributor.authorTien Huy, Nguyen
dc.contributor.authorHamano, Shinjiro
dc.contributor.authorMoji, Kazuhiko
dc.date.accessioned2025-05-21T09:20:11Z
dc.date.available2025-05-21T09:20:11Z
dc.date.issued2020-09-29
dc.description.abstractBackground Nodding syndrome (NS), is an unexplained form of epilepsy which leads to stunted growth, cognitive decline, and a characteristic nodding of the head. Current data about its impact on households in Uganda is scarce. Therefore, this study aims to assess the economic burden of the persistent morbidity of NS on caregivers in affected households in Northern Uganda. Methods Across-sectional cost-of-care study was conducted from January 2019 to February 2019 in Lakwela village-Northern Uganda in 14 households, who are members of a community based organization (CBO) established in the village with the support of a Japanese research team, (Uganda-Japan Nodding Syndrome Network). Data was collected through question naires. Both direct (medical and non-medical) and indirect (informal care) costs of caregiv ing were assessed. Indirect costs were valued using the human-capital method as loss of production. Results Direct costs constituted a higher proportion of costs for NS households, accounting for on average 7.7% of household expenditure. The annual weighted mean cost per NS patient wasestimated at 27.6 USD (26.4 USDdirect costs, 96.2% and1.2 USD indirect cost, 3.8%). Average time spent on informal caregiving was 4.4 ±1.7 (standard deviation) hours/ weekwith anestimated annual informal caregiving cost of 24.85 USD and gross domestic product (GDP) loss of 412.40 USD. Conclusion Direct costs due to NS are still high among households in this study. More studies are needed to investigate measures that could help bring down these costs and equally reduce the day-to-day disruption of caregiver’s activities; consequently, improving the lives of these affected households and communities.
dc.identifier.citationLatio, L. S. Y., Nam, N. H., Shah, J., Smith, C., Sakai, K., Stonewall Shaban, K., ... & Moji, K. (2020). Economic burden of the persistent morbidity of nodding syndrome on caregivers in affected households in Northern Uganda. PloS one, 15(9), e0238643.
dc.identifier.issn19326203
dc.identifier.urihttp://hdl.handle.net/20.500.14270/509
dc.language.isoen
dc.publisherPLOS One
dc.subjectNodding syndrome
dc.subjectEconomic burden
dc.subjectNorthern Uganda
dc.titleEconomic burden of the persistent morbidity of nodding syndrome on caregivers in affected households in Northern Uganda
dc.typeArticle

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